GET A SECOND OPINION.

My CPK : /

and this time kidney damage and my liver enzymes=elevated

talk about starting all over again with no answers

isolated doesn't even begin to describe how I feel because no one can tell me what "this" is

12 minute cardio exercise caused this

not an earthquake crush injury

not a massive heart attack

a cardio exercise caused my (now 4th) diagnosis of Rhabdomyolysis(in less than 2 years)

now I get to see a Nephrologist too (yay)

and have a scan of my spinal cord and brain to check for MS and Devic's disease(doubt I have this last one, first one maybe could be hope not but want answers but god I hope not)

alls I know?

I'm 32, not overweight, otherwise healthy, was in the military and never had a problem before ie: running, marching, drills, training etc but now...


my muscles are deteriorating and breaking down whenever the f*ck they feel like it, it's cause and effect--meaning the muscles I use or accessory muscles involved are the ones that seemingly "break" down after the fact and release these toxins, then causes kidney problems(at least with me)


woe is me right?


Am I being whiny? Well maybe I am idk but really I just feel isolated as f*ck---and just really alone---because every doctor I have seen is scratching their head and can't figure this out, no other patients like this meaning they can pinpoint the underlying cause where as in my case, they can not, makes no sense they say---and I've already been to John's Hopkins Myositis Center--no luck there! And I keep hearing "you're kind of an extra-ordinary patient" or "this is odd" or "we can't explain this" today even my Neurologist said "I just don't know what the hell this is" and all my scouring of the interwebs are a bust.

I put it on the back burner because of my kids, I focus so much on thier school maybe too much just because I really want them to do well but when I'm like told U GO TA HASPITAL NAO OR ALSE DYE(sic intended) I'm forced to think about my health because I can't really be there for them if I'm not "there" (here?) uknowwutimean

K end rant!

fml and my stupid looks fine on the outside rotting on the inside body




oh and f*ck IV therapy(it is annoying, long and makes me swell, have to pee alot and bother the nurses to unhook me to go piss) but at least I'm not on dialysis--and I hope it doesn't get to that point

I've seen fistula's I don't want one :(

What vaccines did you receive while you were in the military?

You really need a local support group. Please check with your doctor.
I am afraid that people on LOP will be mean to you and drive you over the edge.

I am very sorry for you.

But please do not seek comfort on the Internet.

xenoverse  Wrote:

GET A SECOND OPINION.

I've seen so many doctors in the past nearly 2 years, and I've been to John's Hopkins I'm not sure what else I can do other than throw darts on the wall of genetic testing dart board and watch as my insurance refuses to pay for these thousand dollar tests

I had one genetic test done 1700$--insurance didn't over it.

I have teams of doctors spread across a couple states conversing, I've looked into the Cleveland Clinic because of their clinical trials and their research but my point---it's gone beyond just getting a second opinion heh :(